Who Cares?

The Economics of Dignity

Paperback: £36.00

Publication date: 11 October 2011
Size: 240mm x 165mm
ISBN: 978-1-84929-019-7
Pages: 94

At the centre of the HIV/AIDS response are the 12 million people who need care and treatment. Those who are ill require support from carers who provide physical, social and psychological support. Yet these carers – essential actors in the response – are often invisible to the system that relies on them.

The writers argue that focusing on the carer, at the household level, directs assistance where it is most effective and most needed, will respect human rights, and will help achieve the millennium development goals in health.

ContentsExpand or collapse me
About the authors
Acronyms and abbreviations

1. Introduction
2. Dignity in Daily Life: A Conceptual Framework
3. The Conditions of Choice: Capability Servitude in Unpaid HIV Care
4. Stigma and Discrimination: The Situation of People Living with HIV and Their Carers
5. The Duty of Care: The Right to Health in Hospital Settings
6. HIV and Gender-based Violence: The Rights of Unpaid Women and Girl Carers
7. A Case for Justice: The Rights of Prisoners with HIV
8. Dignity Overdue: National HIV Strategies and Unpaid Carers’ Rights

References and bibliography
Annex: Methodology
About the contributors Expand or collapse me

Marilyn Waring (Author)

Professor Marilyn Waring is a feminist economist and public policy expert specialising in the economics of unpaid work.

Robert Carr (Author)

Dr Robert Carr was a sociologist specialising in HIV, marginalisation, and the politics of social exclusion.

Anit Mukherjee (Author)

Dr Anit Mukherjee is a health economist focusing on the economics of development, HIV and national policy.

Meena Shivdas (Author)

Dr Meena Shivdas is a gender and development expert focusing on women's rights, HIV, culture and the law.
ReviewsExpand or collapse me

'At the heart of this wonderful volume are the voices of the carers of people living with HIV, the voices of so many women and girls, but there are also the voices of men: gay men, transsexuals, friends.  And woven around their stories are the international instruments within which their rights can be located, the economic analysis of their plight, and the assertions that they too, like all of us, must have the freedom to make choices and the wherewithal, the agency, to live the lives that they have the capabilities to live.  This is groundbreaking work.  Too long overdue.  May it lead to the needed changes, in policies and in the care we give to the carers.'

Dr Elizabeth Reid, carer, development worker, feminist, and Visiting Fellow, Australian National University